AHC Federation of Europe (AHCFE) Ukraine Statement
AHC UK is a member of the AHC Federation of Europe (AHCFE) and we attach a statement from the federation about AHC families in Ukraine. Our hearts go out to…
The UK Rare Disease Framework
Principles of the UK Rare Diseases Framework “All 4 UK nations have signed up to the UK Rare Diseases Framework and have therefore agreed to collaborate to achieve the outcomes…
[BBC News] My one-in-a-million daughter is a ‘human timebomb’
This article was featured on the BBC Scotland service on World Rare Disease Day 2019 21 March 2019 An Edinburgh mother has described her 18-month-old daughter as a “human timebomb”…
[The Scottish Sun] TOT’S AGONY Scots baby girl suffers one-in-a-million ‘human timebomb’ condition which causes terrifying stroke-like paralysis
Article in The Scottish Sun Stricken Anya Behl, from Edinburgh, suffers from Alternating Hemiplegia of Childhood – and was once left paralysed down her right side for two weeks By…
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