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Alternating Hemiplegia of Childhood - UK
Registered UK Charity No: 1192701
Sara Zagaglia, Dora Steel, S Krithika, Laura Hernandez-Hernandez, Helena Martins Custodio, Kathleen M Gorman, Aikaterini Vezyroglou, View ORCID Profile Rikke S Møller, Mary D King FRCPCH, Trine Bjørg Hammer, View…
Every AHC family I’ve spoken to has a diagnosis story, and I thought I’d share ours with you. We got Ruby and Sophia’s diagnosis in July 2019, when they were…
Hi, I’m Lyndsey, and this is my blog about my family’s life with AHC! I thought I’d use this first post to introduce myself, so here goes. I’m a teacher…
Great response we have got on the second day of the #AHCAwarenessWeek We asked people to show their support to all the AHC Champions but taking a picture of your…
The highlights on this newsletter series looks at: Q & A session with Dr. Katerina Vezyroglou on the ‘AHC and ATP1A3 Natural History Study’ (YouTube Link) Highlighting to register to…
Attaching New Year wishes sent out via our AHC Newsletter on the 5th of January 2021.
AHC UK Research Newsletter 18th January 2021
We would love to hear from you! The AHC and ATP1A3 Natural History Study Alternating Hemiplegia of Childhood (AHC) is an ultra-rare disease with an estimated one in a million…
The Autumn 2020 edition of the Rare Revolution Magazine was entirely dedicated to rare and complex epilepsies of which Alternating Hemiplegia of Childhood was highlighted. The article was written by…