Samuel Runs for our AHC Champions: This is his Running Blog
This is a guest post sent by Rachel who is mummy to little Samuel and is keeping everyone informed of the amazing marathon Samuel is undergoing and all the fundraising…
AHC UK Newsletter 28th February 2021
International Rare Diseases Day Dear AHC families, researchers and supporters, Today, Sunday 28th February 2021, is International Rare Diseases Day Rare Diseases Day is where the international community come together…
Our journey & getting the AHC diagnosis
Every AHC family I’ve spoken to has a diagnosis story, and I thought I’d share ours with you. We got Ruby and Sophia’s diagnosis in July 2019, when they were…
A personal journey of an AHC family: An Introduction
Hi, I’m Lyndsey, and this is my blog about my family’s life with AHC! I thought I’d use this first post to introduce myself, so here goes. I’m a teacher…
Raise your One Finger for AHC #OneinaMillion #AHCAwarenessWeek
Great response we have got on the second day of the #AHCAwarenessWeek We asked people to show their support to all the AHC Champions but taking a picture of your…
AHC UK Research Newsletter Jan 21
The highlights on this newsletter series looks at: Q & A session with Dr. Katerina Vezyroglou on the ‘AHC and ATP1A3 Natural History Study’ (YouTube Link) Highlighting to register to…
New Year Wishes
Attaching New Year wishes sent out via our AHC Newsletter on the 5th of January 2021.
AHC UK Research Newsletter & International AHC Day 18th January 2021
AHC UK Research Newsletter 18th January 2021
AHC Clinical Research in the UK
We would love to hear from you! The AHC and ATP1A3 Natural History Study Alternating Hemiplegia of Childhood (AHC) is an ultra-rare disease with an estimated one in a million…
‘AHC and ATP1A3 Natural History Study’ Q&A session with Dr. Katerina Vezyroglou
Thank you to everyone who joined in this helpful Question & Answer session in November of last year with Dr. Katerina Vezyroglou on her research work. As promised, we have…